Our Vision
The vision of Mes Papillons Foundation is to honor the legacy and lives of Amira and Kelyn Kingsberry by providing children with rare genetic diseases access to much needed medical equipment. It is our hope that the children we serve through Mes Papillons Foundation will be like butterflies, gracing the world with their presence and beauty.
Because of the rare nature of Niemann-Pick C, Amira’s condition was undiagnosed when she passed in 2010. It wasn’t until her younger sister, Kelyn underwent genetic testing in 2017, seven years after Amira’s death, that it was determined that they both had Niemann-Pick C. Between the two cases, my daughters lost so many milestones. They relied on medical equipment including, but not limited to specialized wheelchairs, beds, and car seats. The financial impact of such equipment costs was great and often uncovered by insurance. Your family may be able to relate to what my family went through. This is why our cause is so important.
Mes Papillons Foundation was created to mitigate the financial cost for medical equipment not covered by insurance for families with children with rare genetic conditions. We also will assist families of children undergoing work-ups for a genetic diagnosis on a case-by-case basis.
With your support and donation, we will be able to support these families and children by assisting with the necessary funds to purchase medical equipment. We hope you will partner with us to make this happen.
Let’s help families of children with rare diseases soar!
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Dr. Francemise Kingsberry
Founder/Executive Director